20/20: A Revealing and Intimate Look at Children with Tourette Syndrome: 5/22/09

January 21, 2011
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20/20: A Revealing and Intimate Look at Children with Tourette Syndrome: 5/22/09

An estimated one in every thousand children has Tourette Syndrome, a neuro-biological disorder characterized by a range of symptoms ranging from painful self-abuse and rage episodes to bizarre vocalizations like barking, meowing or even vulgar and profane language. The children are helpless to control the embarrassing behavior, which makes them subject to painful ridicule from their peers and sometimes even adults. For families living with this disorder, it’s an unimaginable reality.

Jay Schadler follows the stories of four girls and their families as they document intimate scenes from their lives in video diaries. The children poignantly discuss the most debilitating effect of Tourette Syndrome, including the emotional impact of social isolation that sometimes includes alienation from their own families.

”20/20” travels to a camp in upstate New York affectionately called ”Camp Tic-a-palooza”, where children are free to exhibit their verbal outbursts and obsessive and unusual behaviors without shame.

They bravely tell their stories and reveal a world never before seen through the amazing candor of their video diaries.

I Have Tourette’s, but Tourette’s Doesn’t Have Me: Dispelling the Myth One Child at a Time

January 21, 2011
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I Have Tourette’s, but Tourette’s Doesn’t Have Me: Dispelling the Myth One Child at a Time

This is heartwrenching, true and powerful.

But, it runs between ten and fifteen dollars at the Tourette Association web page ($9.99 for members, $14.99 for non-members, discounted to $6.99 if you buy it in bulk).

I Have Tourette’s, But Tourette’s Doesn’t Have MeI Have Tourette’s, But Tourette’s Doesn’t Have MepadTSA Member’s Price – NOT A DOWNLOAD – In every school in America, it’s likely that at least one child may have Tourette Syndrome. The children are often stigmatized and almost always misunderstood. HBO Documentary originally aired 11/12/05\r\n dispels the myths of TS through the experiences of young people. Extra DVD features include resources for educators, families, children interested in learning more about Tourette Syndrome, information from experts John Walkup, M.D., Susan Conners, M.Ed., and Evan Trost, M.D.

2008-07-18 – Normal response inhibition in boys with Tourette syndrome

January 21, 2011
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In TS normal response inhibition performance as measured by a Go/Nogo task can be assumed. However, there might be neurophysiological abnormalities in TS possibly related to compensatory mechanisms to control for tics. Hence, further studies combining neuropsychological and neurophysiological methods (e.g. electroencephalography, fMRI) using the same strictly controlled design along the whole range of development and tic severity are recommended.

Link to Study

2008-05-05 – Caudate volumes in childhood predict symptom severity in adults with Tourette syndrome

January 21, 2011
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CONCLUSION:
Caudate volumes in children with Tourette syndrome predict the severity of tic and obsessive–compulsive symptoms in early adulthood. This study provides compelling evidence that morphologic disturbances of the caudate nucleus within cortico-striatal-thalamo-cortical circuits are central to the persistence of both tics and obsessive–compulsive symptoms into adulthood.

Link to Study

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